Say it ain't so!

Yep, we're baaaaack. Back at the childrens hospital that is :( We were
woken up by Evan throwing up a large amount this morning at 5am. He
had just finished his 8 hr slow drip feed (he gets 38ml/hr if formula
overnight through his ng tube since he is too tired to wake and eat).
We were hoping that it was a fluke and fed again his normal 100cc at
7am. We waited until 10am (he was very gaggy but did not throw up) and
we pulled back on his ng tube to see if any residual feed was still in
his belly from 7am. I pulled out 55cc and stopped since he had over
half of his feed three hours later, we knew something was up. I did
not force feed him anymore and paged the peds surgery team. After
going through his story of vomitting, decreased output from his ostomy
and increased residual, the peds surg resident directed us to the ER.
So off mom and Evan went, the trip was not scary like the last time I
had to take him in, I even remembered the valet parking!

By the time his intake was done (meaning telling his history to a
nurse, med student, fellow, and attending- all at different times mind
you) they did labs and an abdomen xray too, the surgery team came to
let me know he was going to be admitted back upstairs for at least one
night. The good news is his labs look good and his xray looks similar
to the last time his stomach decided to take a vacation and not empty
much into the intestines- darn lazy thing!! They say there is a few
things that could be going on, maybe the difflucan he started
yesterday for his thrush that wasn't improving is causing these
changes, maybe this is something that will happen intermittently that
will drive us crazy a he tries to outgrow it, maybe he coincidently
developed pyloric stenosis even though it was negative for that
previously. Or maybe ????? who the heck knows! I am happy they don't
think it's an obstruction and praying they are correct!!! So we have
started feeds again and will have to stay at least one night to see if
he tolerates them without vomitting (so much for Mother's Day
breakfast in bed! Ha, I am sure that was going to happen ;) ) If he
tolerates them again we will keep our appt with Dr.Z that is scheduled
for Thurs and discuss options on how to handle this gastric delay
(different feeding tube placement options possibly) and hope that we
can still move forward with his take down surgery in the near future.
There are so many unkowns which is very unsettling and frustrating for
Ben and I as we try to make life plans (like how about going back to
work!!) but most importantly we just want Evan healthy and on the
mend. He has been through so much and hopes he can catch a break soon!

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