up his sedation meds since they are having more serious talks about
extubating him today or possibly tomorrow. They need to make sure his
airway won't swell shut once they take out the tube so they have
started him on steroids for that. He is breathing completely on his
own now with only pressure support because of his swelling. His
swelling continues to improve and they have even slowed down on the
lasix a bit since he his peeing so well. They say this is a hard time
for parents and I believe it! Since they need him less sedated it
means we have to see him more upset. He has been crying (silently) a
lot this morning and it breaks my heart! I have been holding his hands
and snuggling him with warm blankets to try and soothe him through
these times as best as possible. We have help for a few hours this
afternoon with the other littles so that Ben and I can both be here
with Evan. If they decide not to extubate we will then just take turns
holding the little bean and if they do decide to extubate then we will
also take turns holding the little bean!
The only new thing we are watching is some redness around his
incision. Hopefully it is nothing but I can't help but be a bit
paranoid that it could be a sign like before of sick bowel in his
tummy. The surgeons came in this morning and were ecstatic with his
breathing and ordered his foley catheter to be taken out to decrease
any future infection risks since he is not on antibiotics anymore.
From their perspective we now sit and twiddle our thumbs until we
start feeding on Wednesday.
We continue to be humbled by the love and support shown by so many
during this difficult time for our family. Without this I am not sure
where we would be at right now, so thank you!!
I am looking forward to some time with Ben at the hospital but can't
help but also feel a bit anxious to see Brody, Payton and Riley too!
Praying for the day for us all to be home together again to come as
quickly as healing allows :)
Xo, B
Sent from my iPhone
Prayers continue......
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