My second night here went pretty good. Evan is still making
improvements in all aspects. The PICU team and Surgical team that was
off all weekend is back on today and have all said how much better he
looks and his numbers look compared to when they left on Friday. They
have gotten him almost all the way off of Dopamine. He has went from
10 to 2 with that. He is still stooling a little, but with the lower
Dopamine his urine levels are dropping so today they are really
watching that and deciding whether or not to do another transfusion to
help to suck fluid back in to blood vessels and they would follow that
with a diarrhetic to assist with expelling more bad fluid through
urine or stool. They have also been very slowly weening pain meds
which means he is less sedated and also means he is breathing more
unassisted by the vent which they hope they can start working on
getting off of. All in all he is still very swollen and they really
want to see that decrease so fluid levels of everything is being taken
in to account from the meds he is taking to the IV and everything else
to help him get rid of some of this.
The chief that was his Dr all weekend was just in here and said that
he was off today, but wanted to check him out. He said that from his
point of view he thinks he is looking better everyday. He asked if he
could check on him daily even though he wasn't legally on the clock
until this Friday. So E sure has made quite an impression already on
everyone here. Mom put together a poster board of pictures of him and
his brothers and our family that hangs outside our door and you should
see the groups of people we get sometimes that stop and check it out
and stare sometimes for 5+ minutes. Quite the attraction...
I wasnt going to write this much, but a lady just came by and asked if
she could play her giant harp in our room so I said yes and it sounds
really great. I think Evan likes it and it makes me want to listen to
a giant harp every time I blog.
Still Fighting!
Ben.
--
:) Brooke
I'm on the phone with the harpist now to get her on repeat! Hopefully she understands that we all stalk this page by the hour which means she needs to come by and play more often so that you will increase the amount of time you can blog. ;)
ReplyDeleteYou two are incredible parents and I don't know where you get the strength but thank god you have it! And the fact that you take the time to let us all know how Evan and the rest of the gang are doing...well, we are all so very grateful. Our hearts are with you at all times xoxo
Just wanted you to know that all of us from Full House Moms of Multiples are pulling for all of you - especially that little fighter you have in Evan! You have LOTS of positive energy being sent your way. I know you can all feel it.
ReplyDeleteThinking of you,
Lynn Brown, just another mom
Mom of Ellie and Quinn, 4yo and Henry 22mo.