Slow...Slow--Fast,Fast

The name of the game since we have been here has been "slow and easy",
but now it seems that everything is moving at a accelerated pace.
Don't get me wrong, I love the faster pace knowing that it means he is
getting better and hopefully closer to rejoining us back home, but it
is not easy to get used too after seeing things with him be so
critical. After letting mom stay the last 2 nights in hopes of bottle
feedings starting and getting moved out of the PICU and that not
happening for her I decided it was my turn to spend a night with him.
Well, wouldn't you know it he was moved to the Peds Ward shortly
before I arrived last night and there is talk of trying a bottle feed
some time this morning. Brooke is at home with the others and
planning a trip down this morning so hopefully she can make it before
that starts.

He is definitely moving along though which I guess warrants the faster
pace. He was completely off of any assisted oxygen before I came last
night as well and has been doing great. His lasix are down to just
once a day and he has still been expelling waste and shedding weight.
He was just weighed again this morning and is now at 10.68lbs. The
other big thing that I woke up to this morning is that his monitoring
is off. They said that he is now stable enough to not be monitored any
longer so no more heart rate, respiratory rate, or saturation levels
beeping. He is now truly in a "wait and watch" period. They want to
still watch how he is handling feeds and get him up to about what he
was taking when he came in taking before discharging. That is really
the biggest thing keeping us here right now. Everything else can been
handled at home including some of the meds he is on, his stoma's,
etc...

To go through what he has been through and for us to see the positive
changes that we have seen just in the last few weeks has been so great
and we have felt so blessed. We continue to pray that this positive
progression keeps up as we get closer and closer to the door because I
don't think I'll be able to hold mom back once they start hinting that
home may be close.

Thanks again for everyone's prayers and support!

Ben.

--
:) Brooke